How to tell when we will die : on pain, disability, and doom

Hedva, Johanna, 1984-2024

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Summary

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can't get out of bed? It was not long before this essay, 'Sick Woman Theory', became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism - a system that limits our worth to the productivity of our bodies - we must reach for the revolutionary act of caring for ourselves and others. 'How to Tell When We Will Die' expands upon Hedva's paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal - from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow.